During the months of May and June, the Washington University NF Center, the St. Louis Children’s Hospital Foundation, Jazz St. Louis and Maryville University Music Therapy Department are partnering together for their second six week session of Beat NF, Beat NF–Together! Like the previous session, Beat NF–Together features songs written by our music therapist that are […]
Category: Events
Club NF Zoo Adventure!
On June 7, 2014, the Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation hosted our June 2014 Club NF Event! The program focused on sensory integration, gross motor skills and social skills. Club NF met at the Saint Louis Zoo. The morning began with families meeting a professional zookeeper to learn […]
Washington University NF Center Summer 2014 Newsletter
Check out our Summer 2014 newsletter! Inside this issue: Governor Nixon and Mayor Slay Proclaim May 2014 NF Awareness Month New Study Uses the Fruit Fly to Understand NF2 Gene Function Courtney’s Corner And More! Check out our previous newsletters as well!
A Message from the Director – Spring 2014
After a long hard winter in St. Louis, it is nice to feel a warm breeze again and see the flowers popping up. As we look forward to summer, I want to update you on the progress and events in the Washington University NF Center. First, we will be celebrating 10 years of excellence in […]
Governor Nixon Proclaims May 2014 NF Awareness Month
Jay W. Nixon, governor of Missouri, has proclaimed May 2014 Neurofibromatosis Awareness Month in Missouri. In doing so, Governor Nixon acknowledges all individuals living with NF as well as the work researchers at the Washington University NF Center undertake daily in an effort to find new and better treatments for individuals living with NF. Additionally, […]
Mayor Slay Proclaims the Week of May 12 “NF Week”
Francis G. Slay, mayor of the City of St. Louis, has proclaimed the week of May 12 through May 16, 2014 as “NF Week” in the City of St. Louis. In doing so, Mayor Slay acknowledges all individuals living with NF as well as the work researchers at the Washington University NF Center undertake daily […]
Washington University NF Center Family Raises NF Awareness with Run for Eric
Eric Dominguez was two years old when he was diagnosed with NF1. Since that time, his family has become a passionate advocate for NF research. To raise funds for research and to promote awareness about NF1, the Dominguez family created a group called Run for Eric. Bi-annually, the Dominguez family travels to different locations around […]
SAVE THE DATE: Club NF Zoo Hunt!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce its June 2014 Club NF event – Club NF Zoo Hunt! Please join us at the Saint Louis Zoo on June 7, 2014 for an animal-themed day focusing on sensory integration, gross motor skills and social skills. Families […]
Symposium Sneak Peek: Dr. Kent A. Robertson Discusses NF Clinical Trials
Kent A. Robertson, MD PhD, is the Associate Director of the Stem Cell Transplantation Program at Indiana University and an outstanding translational scientist. He has worked closely with colleague Dr. Wade Clapp, of Indiana University, to direct several clinical trials for people affected with NF1-associated plexiform neurofibromas. His groundbreaking studies have helped to usher in […]
Symposium Sneak Peek: Dr. Joshua Rubin Discusses Malignant Brain Tumors in NF1
Joshua Rubin, MD PhD, is Associate Professor of Pediatrics in the Division of Hematology/Oncology at the Washington University School of Medicine. In addition, Dr. Rubin serves as Co-Director of the Pediatric Neuro-Oncology Center at St. Louis Children’s Hospital. For the past eight years, Dr. Rubin has been studying the role of chemokines in brain tumor […]
SAVE THE DATE: Spring 2014 Session of Beat NF
The Washington University NF Center, in collaboration with Jazz St. Louis and the Maryville University Music Therapy Department, is excited to announce its Spring 2014 Session of Beat NF–Beat NF Together. Please join us at the St. Louis Gym Center in Webster Groves, MO every Friday morning from May 23, 2014 through June 27, 2014 […]
Club NF Rocks!
On April 5, 2014, the Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation hosted their April 2014 Club NF Event! The program focused on building strength, motor planning, coordination and endurance through rock climbing. Club NF met at Climb So iLL in downtown St. Louis, MO. Children had the opportunity to […]
Washington University NF Center Featured in Innovate
The Washington University NF Center was recently featured as the cover story in the Washington University publication Innovate. The article introduces readers to Neurofibromatosis as a disorder and describes how clinicians and researchers in the Washington University NF Center work together to provide NF research, multidisciplinary clinical care and educational and community resources for families […]
Symposium Sneak Peek: Dr. Courtney Dunn and Nicole Weckherlin Discuss Optimizing Outcomes for Children with NF1
Courtney Dunn, PT, DPT, is a Physical Therapist at St. Louis Children’s Hospital and became the lead physical therapist for the NF Clinical Program at St. Louis Children’s Hospital in 2010. Dr. Dunn applies her expertise to identify developmental delays in young children with NF1 and was instrumental in the establishment of Club NF, a […]
Symposium Sneak Peek: Dr. Jonathan Epstein Discusses New Models of NF1-associated heart defects
Dr. Epstein is currently the William Wikoff Smith Chair in Cardiovascular Research, Chairman of the Department of Cell and Developmental Biology and the Scientific Director of the Pennsylvania University Cardiovascular Institute. Dr. Epstein’s research focuses on the molecular mechanisms of cardiovascular development. His group has been at the forefront of determining genetic and molecular pathways […]
Washington University NF Center Spring 2014 Newsletter
Check out our Spring 2014 newsletter! Inside this issue: Gender Influences Symptoms of NF1 Toddlers Show Progress After Beat NF Get Involved in Research And More! Check out our previous newsletters as well!
SAVE THE DATE: Club NF Rocks!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce its April 2014 Club NF event – Club NF Rocks! Please join us at Climb So iLL in downtown St. Louis on April 5, 2014 for indoor rock climbing. We will be focusing on strength, motor planning and […]
Symposium Sneak Peek: Dr. Kimberly Johnson Discusses How Epidemiological Studies Can Inform NF1 Research
Kimberly Johnson, MPH PhD, is Assistant Professor at the Washington University George Warren Brown School of Social Work. For the past two years, Dr. Johnson has spearheaded the NF1 Patient Registry Initiative (NPRI). At the Washington University NF Center Research Symposium, Dr. Johnson will report on her newest findings from the NPRI. Dr. Johnson will be […]
A Message from the Director – Winter 2014
As we delve into 2014, I wanted to update you on the exciting plans we have in store at the Washington University NF Center. First, we celebrate 10 years of excellence in the Washington University NF Center and 20 years of providing multi-disciplinary care in the NF Clinical Program at St. Louis Children’s Hospital. To […]
SAVE THE DATE: NeuroDay 2014 at the St. Louis Science Center
Join the Washington University NF Center at NeuroDay 2014 at the St. Louis Science Center! Team NF is heading to NeuroDay 2014 at the St. Louis Science Center on March 8 from 10AM to 4PM. NeuroDay is an annual expo featuring free hands-on activities focused on learning about the brain and cutting-edge brain research. Featured […]