Children and young adults with NF1 and NF2 are seen at St. Louis Children’s Hospital by a core NF care team composed of neurologists, a pediatric nurse, and a pediatric occupational therapist. During the clinic visit, a thorough evaluation is performed, which includes assessment for developmental delays, behavior and learning issues, and NF-related neurological problems.
Making an Appointment
A referral is required to make an appointment. Please see the Referrals section below.
To schedule an appointment with the Washington University NF Center Clinical Care Program at St. Louis Children’s Hospital, please call:
- 214-454-6120 or 800-678-KIDS
If you have questions about making an appointment, email us at: NFClinic@wustl.edu
Emergency After Office Hours
To reach the neurosurgeon or otolaryngologist on call at Barnes-Jewish Hospital, call 314-362-5000. Alternately, call 314-454-6000 and ask for the pediatric neurologist on call.
Preparing for Your Appointment
Prior to your appointment, please:
- Fax all previous medical tests and records to us at 314-454-2523
- Mail any computer disks containing imaging studies (MRI, CAT scans) to us at:
NF Clinical Program
Attn: Pediatric Neurology
4990 Children’s Place
Northwest Tower, 12th Floor
St. Louis, MO 63110
- Have your insurance information/card(s) ready to bring to your appointment
Getting to Your Appointment
Patients are seen at St. Louis Children’s Hospital:
One Children’s Place
2nd floor, Suite 2130
St. Louis, MO 63110
St. Louis Children’s Hospital is located in midtown St. Louis on the Washington University Medical Center campus, across from historic Forest Park.
Take Hwy 40/64 to Kingshighway Blvd, go north to the stoplight intersection of Children’s Place, and turn right (east) into the parking garage.
Families and guests can park in the hospital’s visitor parking garage at the intersection of Kingshighway Blvd. and Children’s Place. After turning east on Children’s Place from Kingshighway, make an immediate right into the garage. Once you’ve parked your vehicle, take the elevator to the second-floor walkway. The NF Clinical Program is located in Suite 2130. If you need additional help, the information desk is on your left as you enter the hospital.
For additional information regarding your visit to St. Louis Children’s Hospital, please contact Transportation Services at 314-454-2615.
Out-of-Town & International Patients
Patients in the continental United States can be directed to the St. Louis Children’s Hospital Family & Guest Services for assistance with lodging. For questions on directions or visitor information, patients should visit the St. Louis Children’s Hospital Online Visitors’ Guide or contact Guest Services at 314-454-6000.
We are always interested in extending treatment to overseas patients. We ask patients to coordinate their requests for second opinions or treatment through their personal physician or sponsoring organization. Before any expense is incurred, a thorough review of records is necessary to determine if we can help the patient.