Exceptional care, groundbreaking research
The Washington University NF Center is focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF.
When it comes to interpreting and applying big data in health care, people may not agree on the best terminology. Most agree on one thing: Big data is an abstract, intimidating concept. Continue reading the article published in Outlook Magazine about how Philip R.O. Payne, PhD and David H. Gutmann, MD, PhD employed informatics to predict symptom severity in children with NF1, a genetic disorder that causes brain and nerve tumors, as well as autism spectrum disorder (ASD).
Keyboarding is meant to be a quicker, more functional option for students, especially those that struggle with handwriting. Using a third party keyboard, such as SuperKeys, provides a more accessible option for typing on the iPad. In this month’s Nicole’s Nook, Nicole Weckherlin, St. Louis Children’s Hospital Occupational Therapist, recommends the SuperKeys app, exploring the many options for making keyboarding and typing a more functional mode for many students and users!
Children with Neurofibromatosis type 1 (NF1) are commonly shorter than typically developing children in the general population. While this short stature results from a change (mutation) in the NF1 gene, the reasons for this reduced height have not been identified. In a new study, St. Louis Children’s Hospital resident, Nick Zessis, MD, under the direction of Dr. Abby Hollander, Professor of Pediatrics and Clinical Director of the Division of Endocrinology and Diabetes, examined the growth rates in children with NF1 over time.
Oct 18, 2018
Children with Neurofibromatosis type 1 (NF1) are commonly shorter than typically developing children in the general population. While this short...
Aug 15, 2018
Register for the 2018 Symposium The Washington University NF Center will be hosting its fourth biennial NF Center Symposium on...
Aug 9, 2018
This article, written by Tamara Bhandari, originally appeared in the Washington University School of Medicine News Hub on August 8,...