Exceptional care, groundbreaking research
The Washington University NF Center is focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF.
Nearly one in every five children with NF1 will develop a brain tumor involving the nerve that carries vision from the eye to the brain (optic nerve). In an effort to identify more effective tumor therapies, advanced mathematic approaches were applied to whole tumor RNA sequencing data. Read further about Dr Yuan Pan’s recent study showing how these mathematics approaches can potentially be used to better predict tumor treatment response.
Join us Saturday, September 23, 2017, for the Forward Strides 4 NF family fun walk to help raise funds to further NF research and patient care. After the walk, you can enjoy food, drinks, music and a raffle drawing. Be sure to register early to secure your Forward Strides 4 NF T-shirt. Race day registration starts at 9:00 AM, with the race will beginning at 10:00 AM. All proceeds will go directly to the Washington University NF Center.
Growing up with seven siblings, none of whom had NF1 was tough for Emily. As an infant she was diagnosed with NF1, a disease her family knew nothing about. Through her writing, Emily was able to overcome being defined by her NF, and wants to be a ray of hope for other young people. Read more about Emily’s journey from childhood to adulthood, and how her love for writing has helped her find and accept herself.
Aug 15, 2017
Nearly one in every five children with NF1 will develop a brain tumor involving the nerve that carries vision from...
Jul 25, 2017
Children with Neurofibromatosis type 1 (NF1) are prone to the development of low-grade brain tumors affecting the nerve carrying vision...
Jul 13, 2017
While virtually all adults with Neurofibromatosis type 1 (NF1) develop benign tumors associated with nerves, called neurofibromas, these tumors can...