Exceptional care, groundbreaking research
The Washington University NF Center is focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF.
Children with NF1 may also have problems with attention, learning, and developing peer relationships (friendships). These social interaction problems are often caused by Autism Spectrum Disorder (ASD), and frequently go unrecognized during childhood. Use this handout to learn more about ASD and its relation to NF1, and how it is important to identify ASD early and to promptly obtain appropriate resources.
Soft tissue cancers, including malignant peripheral nerve sheath tumors arising in people with Neurofibromatosis type 1 (NF1), have recently undergone comprehensive genetic and genomic analyses. Read further about this landmark study, involving Drs. Brian Van Tine (Medical Oncology) David H. Gutmann (Neurology) and Li Ding (Genetics) from Washington University, characterizing over 200 adult sarcomas representing six different types of these cancers.
Club NF is a FREE program that gives school-aged children (grades K - 8) with NF1 the opportunity to experience therapeutic activities within the community setting. Please join us at our next Club NF event on Saturday, June 2nd, at Schnucks Cooking School for an event featuring food preparation education and cooking. The activities will target and promote development of fine motor skills, executive function skills and social skills, often delayed in children with NF1.
10:00 AM to 12:00 PM
9:00 AM to 4:00 PM
May 7, 2018
Soft tissue cancers, including malignant peripheral nerve sheath tumors arising in people with Neurofibromatosis type 1 (NF1), have recently undergone...
Apr 6, 2018
Investigators from the Perelman School of Medicine at the University of Pennsylvania, led by Dr. Amita Sehgal, has uncovered that...
Mar 2, 2018
Investigators at the Washington University NF Center were delighted to have Professor Helmut Kettenmann visit from the Max Delbrück Center...