Exceptional care, groundbreaking research
The Washington University NF Center is focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF.
Neurofibromatosis (NF) encompasses a set of complex genetic disorders that affects nearly every organ system. An international leader in research and treatment of NF, the Washington University NF Center unites outstanding basic laboratory and clinical investigators with expert clinicians to provide comprehensive treatment options for children and adults with these complex genetic conditions. Read more about how the Washington University NF Center provides exceptional care through groundbreaking research.
Beat NF is a FREE program that provides your toddler or preschooler with NF1 a one-of-a-kind jazz music experience seamlessly integrated with gross motor and social skill activities. Developed by a team of St. Louis Children’s Hospital therapists and Jazz St. Louis musicians, each class will improve your child’s gross motor skills while offering a platform to progress language skills, leadership and confidence. Read more about how to register for our upcoming event starting on Tuesday, October 10, 2017.
Club NF is a FREE program that gives school-aged children (grades K - 8) with NF1 the opportunity to experience therapeutic activities within the community setting. Please join us at our next Club NF event on Saturday, October 7th, at the Saint Louis Science Center for an instructional event where participants will create a Rube Goldberg machine and learn to build Salvage Bots. The activities will target and promote development of fine motor skills, executive function skills and social skills, often delayed in children with NF1.
10:00 AM to 1:00 PM
10:00 AM to 12:00 PM
Aug 15, 2017
Nearly one in every five children with NF1 will develop a brain tumor involving the nerve that carries vision from...
Jul 25, 2017
Children with Neurofibromatosis type 1 (NF1) are prone to the development of low-grade brain tumors affecting the nerve carrying vision...
Jul 13, 2017
While virtually all adults with Neurofibromatosis type 1 (NF1) develop benign tumors associated with nerves, called neurofibromas, these tumors can...