The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation, is excited to announce our October 2015 Club NF event – Club NF Goes to FuNFest! Please join us on Saturday, October 3, at the Walk Family’s 5th annual FuNFest, which will also include Club NF. FuNFest is an annual fundraiser sponsored by the Walk […]
Category: Events
YOU’RE INVITED: Club NF Plays at the Lodge!
The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation, is pleased to announce our upcoming August 2015 Club NF event – Club NF Plays at the Lodge! Please join us at The Lodge Des Peres in Des Peres, MO on Saturday, August 1, from 9:30 a.m. – noon for an action-packed morning of indoor […]
Washington University NF Center Summer 2015 Newsletter
Check out the summer 2015 newsletter for some of our most popular research articles, recommendations to improve your child’s ability to participate in sports and other activities, details about upcoming events this summer and more! Some of the highlights in this issue include: Human Skin Cells Help Researchers Understand Learning Problems in NF1 Courtney’s Corner: Improving Strength […]
Washington University NF Center – Spring 2015 Newsletter
It’s officially spring, and we at the Washington University NF Center are excited to kick off another year of providing exceptional care through groundbreaking research! Check out the spring 2015 newsletter for some of our most popular recent research updates, information about our upcoming Club NF and Beat NF events and more. Some of the […]
YOU’RE INVITED: Club NF Acts!
The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation, is pleased to announce our upcoming April 2015 Club NF event – Club NF Acts! Please join us at Parkway South High School in Manchester, MO on Saturday, April 4 from 9:30 a.m. – noon for an exciting morning of musical theatre. During this […]
YOU’RE INVITED: Club NF Goes Surfing!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is pleased to announce our first 2015 Club NF event – Club NF Goes Surfing! Please join us at Core 3 Fitness Studio in Brentwood, MO on Saturday, February 7 from 10 a.m. – noon for an exciting morning of indoor surfing and yoga. During this event, […]
JOIN US: Dine Out for NF Night at JJ Twigs – O’Fallon, MO!
One of our Washington University NF Center families is hosting a “Dine Out for NF” night at their restaurant, JJ Twigs (O’Fallon, MO location only), on Tuesday, January 20 from 4 – 10 p.m. Present the flyer (at right) during your visit, and have 15% of the sale donated to the Washington University NF Center to further […]
Washington University NF Center Winter 2014 Newsletter
2014 might be winding down, but the Washington University NF Center is still hard at work in our research laboratories and at our innovative outreach programs, like Beat NF and Club NF! Check out the winter 2014 newsletter for some of our most popular research articles, a reflection on our successful fall Beat NF event and more! […]
Fall 2014 Beat NF Program Another Success!
We had our last session of the fall 2014 Beat NF program yesterday, and I already know I will miss my five little friends next Wednesday morning. Beat NF, a jazz, music therapy program for toddlers with NF Type 1, concluded this morning after six successful weeks. Through the collaborative efforts of Jazz St. Louis, the Washington University […]
SAVE THE DATE: Club NF Goes Ice Skating!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce our December 2014 Club NF event – Club NF Goes Ice Skating! We know the holiday season can be a busy time, but hope you are able to join us on December 6 from 10 a.m. – 12:30 p.m. […]
Club NF Had a Great Time at FuNFest 2014!
This past Saturday, a group of Washington University NF Center coordinators, St. Louis Children’s Hospital therapists and Club NF families traveled to Gatch Lake near Vandalia, Il to support FuNFest for the second year in a row. The 4th annual FuNFest, a fundraiser held by Amanda and Brian Walk, is a community event which includes games […]
SAVE THE DATE – Join Us at Fall 2014 Beat NF!
The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation and Jazz St. Louis, is proud to host the fall 2014 Beat NF Together 6-week program starting on Wednesday October 15 at the Harold and Dorothy Steward Center for Jazz in downtown St. Louis. Beat NF is a toddler and parent […]
Washington University NF Center Fall 2014 Newsletter
Hot off the press – check out our fall 2014 newsletter! Inside this issue: Washington University NF Center Family Celebrates Final Day of Chemotherapy Researchers Publish Findings on New Plexiform Neurofibroma Treatment Beat NF: Understanding how Music Therapy Helps Children with NF1 Join us at 2014 fuNFest! And More! Be sure to take a look at our previous newsletters as […]
Club NF Original Artwork Ribbon Cutting Event
On Wednesday, August 27th at 1:15 p.m., members of the Gutmann Laboratory gathered in the hallway outside of the Washington University NF Center for a ribbon cutting ceremony with local artist Vicki Friedman. Ms. Friedman worked with our families at the February 2014 Club NF event entitled a “Day of Art – Focusing on self-expression […]
SAVE THE DATE: Club NF Goes to fuNFest!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce our October 2014 Club NF event – Club NF Goes to FuNFest! Please join us on Saturday, October 4, at the Walk Family’s 4th annual FuNFest which will also include Club NF. FuNFest is an annual fundraiser sponsored by the Walk […]
A Message from the Director – Summer 2014
With thoughts of children returning to school and pleasant fall weather in St. Louis, I wanted to update you on developments and events happening in the Washington University NF Center. On May 16, 2014, we hosted the second Washington University NF Center Research Symposium in the Eric P. Newman Education Center on the campus of […]
Club NF Swims!
On August 2, 2014, the Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation hosted their August 2014 Club NF Event! The program focused on gross motor development and learning organizational skills. Club NF met at the Des Peres Lodge. The morning began with the children working on motor skill development […]
Back to School: Time Management
The 2014 – 2015 school year is fast approaching! Time can be difficult to come by during the school year for parents and students alike. Add time constraints to the fact that children with NF1 often struggle to stay on task and it may feel like it is impossible to fit everything your child needs […]
SAVE THE DATE: Club NF Swims!
The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce its August 2014 Club NF event – Club NF Swims! Please join us at The Lodge Des Peres on August 2, 2014 for a back to school-themed day focusing on organizational skills, gross motor skills and social skills. As children work with therapists […]
Beat NF: Understanding How Music Therapy Helps Children with NF1
Welcome to a special guest post from Beat NF Music Therapist, Dr. Cynthia Briggs! Cynthia Briggs, PhD, is a licensed Music Therapist and faculty member at Maryville University. She has collaborated with the Washington University NF Center and Jazz St. Louis to create Beat NF–a jazz music therapy program for toddlers with NF1. Music Therapy […]