Register today to join us at the upcoming Washington University NF Center Research Symposium on Friday, April 1, 2016 in the Eric P. Newman Education Center! Learn more about the NF experts who are scheduled to present during the afternoon session.
Author: annawilson
YOU’RE INVITED: Club NF Picnics in Forest Park
Join us on Saturday, April 9, for the Club NF Family Picnic in Forest Park! Children will work on a variety of gross motor, fine motor and social skills through participation in fun outdoor activities like potato sack races and hula hooping, and we will enjoy a catered picnic lunch at the conclusion of the event.
Washington University Experts to Present at Research Symposium
Learn more about the Washington University experts who are scheduled to present during the morning session of the upcoming Washington University NF Center Research Symposium on Friday, April 1, 2016 in the Eric P. Newman Education Center.
Nicole’s Nook: Visual Scheduling with Choiceworks
For children with NF1, a visual schedule provides structure and a feeling of control over their environment, increasing completion of daily tasks and transitions. St. Louis Children’s Hospital OT, Nicole Weckherlin, recommends the Choiceworks app to address these concerns.
NF Center Research Symposium Keynote Speaker: David Largaespada, PhD
We are excited to host David A. Largaesppada, PhD as one of our two keynote speakers for the 2016 Washington University NF Center Research Symposium to be held on April 1, 2016 in the Eric P. Newman Education Center on the Medical School Campus.
YOU’RE INVITED: Club NF Cooks
Join us on Saturday, February 27, from 9:30 a.m. – noon, as Club NF heads into the kitchen at Schnucks Cooks Cooking School in Des Peres, MO! Children will work on a variety of fine motor and social skills in the kitchen while Courtney Metzinger, OTD, MFA, OTR/L will give a one hour talk about executive function to parents.
NF Center Research Symposium Keynote Speaker: Alcino Silva, PhD
We are excited to host Alcino Silva, PhD as one of our two keynote speakers for the 2016 Washington University NF Center Research Symposium to be held on April 1, 2016 in the Eric P. Newman Education Center on the Medical School Campus.
Physician-Researcher Struggles with Challenging ‘Moonshot’ Problem
Highlighted for his groundbreaking work at the Washington University NF Center, Dr. David H. Gutmann, director, reveals his experiences and challenges in effectively treating Neurofibromatosis in a recent interview with the St. Louis Jewish Light.
Nicole’s Nook: SnapType Eases Handwriting Struggles
Do struggles with fine motor skills affect your child’s ability to complete homework assignments? In this month’s blog, St. Louis Children’s Hospital OT, Nicole Weckherlin, OTR/L, provides information about SnapType, an easy-to-use, kid-friendly app that allows children to complete worksheets on an iPad.
Washington University NF Center Researchers Discover Potential Target for NF1 Optic Glioma
Using new RNA sequencing methods pioneered by Dr. Elaine Mardis and her colleagues, Dr. Anne Solga discovered that one particular growth factor, Ccl5, is a major driver of optic glioma growth in mice.
NF Center Volume 1, 2016 Newsletter
View the NF Center Volume 1, 2016 newsletter, which includes a message from esteemed Washington University NF Center director, Dr. David H. Gutmann, MD, PhD, highlights last year’s progress and features plans for a successful 2016.
NF Center Researchers Spearhead International Consortium
Together with Dr. Michael Fisher at Children’s Hospital of Philadelphia, David H. Gutmann, MD, PhD has spearheaded a new groundbreaking project, Synodos for NF1 Research Consortium, recently funded by the Children’s Tumor Foundation.
Patient Spotlight: Garrett’s NF1
Garrett Dohlke was diagnosed with Neurofibromatosis type 1 (NF1) when he was just 5 years old. Garrett’s family had never heard of NF1 and was devastated. Read about Garrett’s journey with NF1 and how he overcame many of the challenges associated with the condition.
NF Highlighted at 20th Annual Society for Neuro-Oncology Meeting
Basic and clinical science advances in NF1 were featured prominently at the recent Society for Neuro-Oncology meeting. Presentations focused on improving outcomes for children with optic pathway gliomas and discovering new treatments for malignant cancers in NF1.
Siteman Cancer Center Honors Rock Docs
The Alvin J. Siteman Cancer Center held its 10th Annual Cureiosity Event to support promising new areas of research for cancer. Hosted by honorary chair, Mike Shannon, this extravagant gala took place on Friday, November 13, at the Four Seasons Hotel. During the event, all previously awarded Rock Docs were recognized to celebrate the 10th […]
JOIN US: Club NF Participates in the Go! St. Louis Read, Right & Run Marathon
Club NF hits the pavement! The Washington University NF Center, St. Louis Children’s Hospital and the Go! St. Louis Marathon and Family Fitness Weekend have paired up to provide our families the perfect event to jump start fitness. Being an active family has benefits that are far reaching; children who are involved with sports and […]
Nicole’s Nook: Easily Share Files on Your iPad
As we are now well into the school year and parent/teacher conferences have just been (or will soon be) held, many families may be reevaluating their student’s progress and ability to accomplish their school-related tasks. The iPad may play a key role in your child’s school day, but printing and sharing work is often a […]
Washington University NF Center Welcomes New Researcher
The Washington University NF Center welcomes Ran Chen, PhD, to the Gutmann Laboratory. Dr. Chen received her PhD in Biochemistry from the University of Iowa in 2015 prior to joining the laboratory of David H. Gutmann, MD, PhD. She is interested in understanding how stem cells in the brain give rise to brain tumors. She will […]
Wrapping Up Another Successful Beat NF Session!
The fall Beat NF session wrapped up this past Wednesday with our toddler participants, both new and seasoned veterans to the program, enjoying five weeks of play-based motor-music therapy in the Centene Education Center classroom on the top floor of the Harold and Dorothy Steward Center for Jazz. A typical Beat NF class begins with […]
Gutmann Appointed to NIH Advisory Board
David H. Gutmann, MD, PhD, the Donald O. Schnuck Family Professor and Director of the Washington University Neurofibromatosis (NF) Center, was recently appointed to the Advisory Council for the National Institute of Neurological Disorders and Stroke (NINDS).