NF Center Volume 2, 2016 Newsletter

Check out the NF Center Volume 2, 2016 newsletter (pdf) to read about the NF Center’s 3rd biennial Research Symposium, recent research driving us toward personalized treatment for people with NF1, and the JazzTimes article highlighting Beat NF, our music-motor therapy program for toddlers with NF1.

UPDATE: Clinical Trials Recruiting Participants

Interested in participating in an NF-related clinical trial? Check out the recently updated NF Clinical Trials section of our website to view ongoing and new trials that just recently started recruiting participants.

Nicole’s Nook: App Spotlight

In this month’s Nicole’s Nook blog, Nicole Weckherlin, OTR/L, showcases another one of her favorite apps, Co:Writer, a great app for word processing and document creation. With features like text-to-speech, word prediction and topic dictionaries, it is an extremely useful app for children with NF1.

YOU’RE INVITED: Club NF Paints Pottery

Join us for a morning of pottery design and painting at the next Club NF event, Club NF Paints Pottery, on Saturday, June 11, from 9:30 a.m. – noon at Pottery Hollow in Kirkwood, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine motor skill development.