Nicole’s Nook: New Features of iOS 8

This holiday season, many of you may have received a new iPhone, iPad or iPod as a holiday gift, or you may gift yourself the latest iOS 8 update to make your existing device new to you! Whatever the case may be, this month I would like to share some features of this latest update. […]

Understanding the Impact of Co-existing Genetic Mutations on Optic Glioma Growth

One of the most common tumors seen in children with neurofibromatosis type 1 (NF1) is the optic pathway glioma, a low-grade tumor that forms within the nerve carrying vision from the eyes to the brain. While most of these tumors are caused by mutations in the NF1 gene, rare optic pathway gliomas may also harbor […]

HEC-TV Innovations: Features Washington University NF Center

It was months in the making, with film crews set up in the research laboratory, at our clinical program at St. Louis Children’s Hospital and even at our jazz music-motor therapy program, Beat NF. The HEC-TV associates have been hard at work, recording candid interviews and capturing meaningful moments among the Washington University NF Center physicians, therapists, researchers, patients […]

Washington University NF Center Winter 2014 Newsletter

2014 might be winding down, but the Washington University NF Center is still hard at work in our research laboratories and at our innovative outreach programs, like Beat NF and Club NF! Check out the winter 2014 newsletter for some of our most popular research articles, a reflection on our successful fall Beat NF event and more! […]

Gutmann Delivers the 8th Annual Riley Church Lecture

David H. Gutmann, MD, PhD, the Donald O. Schnuck Family Professor and Director of the Washington University Neurofibromatosis (NF) Center, was selected as the 8th Riley Church Professor. This honor was presented by Andrea and Marty Church following Dr. Gutmann’s lecture on December 5th at the Stanford University School of Medicine. Dr. Gutmann spoke on […]

New Drug Shows Promise for NF1 Plexiform Neurofibromas

Plexiform neurofibromas are common benign nerve tumors seen in children and adults with neurofibromatosis type 1 (NF1). While these tumors are typically slow growing, some may require treatment. In a study spearheaded by Dr. Brian Weiss at Cincinnati Children’s Hospital and conducted as part of the Department of Defense-funded NF Clinical Trials Consortium, Sirolimus was […]

Courtney’s Corner: Holiday Shopping

As the holidays near, I always begin to panic. Not about putting up decorations or hosting a holiday meal, but about having an influx of gifts in the house, which ultimately create more clutter and often go unused. Each year, I try to take a step back and come up with a list of gifts that my […]