It was months in the making, with film crews set up in the research laboratory, at our clinical program at St. Louis Children’s Hospital and even at our jazz music-motor therapy program, Beat NF. The HEC-TV associates have been hard at work, recording candid interviews and capturing meaningful moments among the Washington University NF Center physicians, therapists, researchers, patients and their families. The outcome: an in-depth look at the multidisciplinary team approach we take to treating Neurofibromatosis type 1 (NF1), the life-changing relationships we form with our patients and the groundbreaking research which makes it all possible.
Cordell Whitlock of HEC-TV approached Dr. David H. Gutmann, MD, PhD, Director of the Washington University Neurofibromatosis (NF) Center, back in May 2014 with his idea to feature our unique and innovative approach to treating NF1, the most common disorder most people have never even heard of. Dr. Gutmann jumped at the chance to bring awareness about this life-altering condition to the public and highlight the struggles and triumphs experienced by families who are affected by it. I think I can speak for everyone here at the Washington University NF Center when I say we are grateful to Cordell and the HEC-TV team for putting together such an incredible piece, and we are so thankful to have the opportunity to make such a positive difference in the lives of our patients every day.
Click here to view the feature, and learn more about how the Washington University NF Center is delivering exceptional care through groundbreaking research.
– Written by Courtney L Monroe, Washington University NF Center Clinical Research Assistant II