Club NF

The Washington University NF Center, along with the St. Louis Children’s Hospital Foundation, is proud to provide Club NF, our free, bi-monthly, play-based therapy program for children with NF1 in kindergarten – 8th grade.

Email our event coordinator at NF@neuro.wustl.edu to be added to our mailing list to receive notifications about upcoming Club NF events.

CNF-RRR

Club NF participated in the GO! St. Louis Read, Right & Run Marathon on April 9 in Forest Park.

Play-based therapy

Our St. Louis Children’s Hospital therapists interact directly with the children and use everyday activities to work on skills often delayed in children with NF1. From swimming to improve motor skills to participating in theatre to address attention deficits, Club NF is designed to give children the tools they need to succeed. Read our Club NF brochure (pdf) to learn more about the program.

Skills addressed at Club NF

Each Club NF event focuses on a variety of gross motor, fine motor and attention/behavioral skills, encouraging children with NF1 to further develop skills they may struggle with in their day-to-day lives.

Gross motor skills

  • Gym games
  • Rock climbing
  • Hiking
  • Ice skating
  • Indoor surfing

Fine motor skills

  • CookingClub NF Cooks
  • Gardening
  • Handwriting
  • Art – drawing/painting
  • Sewing
  • Jewelry-making

Attention, behavioral & social skills

  • Drama/acting/theatreClub NF Plays Chess
  • Chess
  • Board games
  • Zoo tours

Parent/caretaker participation

Each Club NF event is designed to address a specific skill often delayed in children with NF1. While the children are working on those skills with their therapists, parents have the opportunity to speak with NF specialists about how to work on those skills at home. In addition, Club NF is the perfect time for families to network and share their experiences and successes with one another.

The Washington University NF Center thanks the St. Louis Children’s Hospital Foundation for making this program possible.