To better understand how behavioral symptoms develop in children with NF1, Dr. Stephanie Morris is leading a clinical study to measure symptoms of attention deficit, autism, and other behavioral problems in preschool-age children with NF1 aged 2.5 to 6.5 years old. Participation in this study involves the completion of three parent-reported questionnaires (completed during the annual NF clinic appointment), a single blood draw for NF1 gene testing (if clinical genetic testing has not been previously performed), and the possibility of a formal Autism diagnostic assessment for children with significant autism symptoms. Modest monetary compensation will be provided to offset the time and effort required for study participation.
All clinical studies are actively enrolling, and participation is purely voluntary. If interested in participating, please let the NF team know during your next clinical appointment.