May is NF Awareness Month!

May is NF Awareness Month, join the Washington University NF Center in raising awareness, and supporting education and research, throughout the Neurofibromatosis community.

Dress in blue in support of
NF Awareness on
World NF Awareness Day,
May 17th, 2020!

FACTS ABOUT NEUROFIBROMATOSIS

  • A set of complex genetic disorders that affects almost every organ system
  • NF1 affects one of every 3,000 births
  • Occurs worldwide, and in both sexes, as well as all races and ethnic groups

In the Washington University Neurofibromatosis (NF) Center, clinicians and laboratory scientists work together to accelerate the pace of scientific discovery and its application to the care of individuals with NF.

To learn more visit our other web pages…

 

Gutmann Receives Advocate of Hope Award

Honored for dedication to finding causes, treatments for common genetic disease

David H. Gutmann, MD, PhD, the Donald O. Schnuck Family Professor and vice chair for research affairs in the Department of Neurology at Washington University School of Medicine in St. Louis, has received the Advocate of Hope Award from the national Neurofibromatosis (NF) Network.

The NF Network is a nonprofit dedicated to helping people living with NF, a set of complex genetic disorders of the nervous system that is characterized by tumors that can grow on nerves in the brain and throughout the body.

The Advocate of Hope Award honors Gutmann for his work in the field of NF and his compassion for NF patients. For more than 25 years, he has devoted his academic career to improving the lives of people with NF, through laboratory and clinical research. He established the NF clinical program at St. Louis Children’s Hospital in 1994, which serves as a regional referral center for patients. In addition, he founded and directs the Washington University NF Center, one of the world’s largest centers focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF.

Written by Tamara Bhandari, Washington University School of Medicine, Senior Medical Science Writer.
This article originally appeared in the Washington University School of Medicine News Hub on May 4, 2020.