A Message of Hope from the Director

Dear NF Community, Family and Friends, We are living in unprecedented times. We are being asked to limit our social interactions to reduce the spread of a potentially deadly virus. We are all scared, worried, and understandably panicked. However, unusual circumstances call for extraordinary acts of courage, grace, and kindness. As we physically distance ourselves […]

NF Center 2020, Volume 1 Newsletter Published

Check out the NF Center 2020, Volume 1 newsletter (pdf) to read about new research on NF1 brain tumors, learn about our new NF Center faculty member, read updates on patient engagement, and learn about our upcoming complementary care program events. Additionally, learn about: Unique presentation of NF2 in young children Updates from Courtney’s Corner […]