Patient Spotlight: Lexi’s Journey with NF1

Forward Strides 4NF: Walking for awareness, Racing towards a cure!  Forward Strides 4NF is a charity that I started in 2016 in honor of two very special people who both deal with Neurofibromatosis (NF) on a daily basis – my husband, Alex, and my daughter, Lexi. Alex was diagnosed with Neurofibromatosis type 1 (NF1) when […]

NF Researchers Discover Role for NF1 in Circadian Rhythm Function

Investigators from the Perelman School of Medicine at the University of Pennsylvania, led by Dr. Amita Sehgal, has uncovered that the NF1 gene controls the brain’s perception of time of day signals. Working in flies, her team previously found that the Nf1 gene is important for establishing and maintaining time of day (circadian) rhythms. However, […]