NF Center 2016 Volume 3 Newsletter Published

v3-newsletterCheck out the NF Center 2016 Volume 3 newsletter (pdf) to read about recent fundraising events held by the families of NF Center Clinical Program patients to support NF awareness and research.

Additionally, learn about:

  • Research grants awarded to Gutmann Laboratory scientists.
  • Research studies linking NF1 to Autism Spectrum Disorder (ASD) trait burden.

If you haven’t already done so, be sure to also take a look at our previous issues of the quarterly newsletter for additional NF-related research updates and patient spotlights!

Walk Family’s FuNFest Raises Money for NF Research

On November 11, 2016, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center to celebrate another successful fuNFest event.

FuNFest is a family-friendly festival designed to create awareness about NF and to raise funds for NF research. The event includes games, bounce houses, music, a live auction, silent auction bidding, and the infamous Cow Patty Bingo.

This year’s fuNFest raised an impressive $27,574.64, which will fund Gutmann Laboratory research initiatives aimed at developing personalized medicine approaches for people affected by NF. The Washington University NF Center extends its heartfelt gratitude to Amanda and Brain Walk, who worked tirelessly to plan this event.

Our patients and their families are an integral part of our mission to provide exceptional care through groundbreaking research. Because of families like the Walks, we are able to conduct cutting-edge research and provide outstanding complementary care resources.

David H. Gutmann and Gutmann Laboratory researchers with Brian, Amanda, Jordan and Isabella Walk

David H. Gutmann and Gutmann Laboratory researchers with Brian, Amanda, Jordan and Isabella Walk.