YOU’RE INVITED: Club NF Yoga & Swimming

Join us for a morning of yoga and swimming at the next Club NF event, on Saturday, August 6, from 9:30 a.m. – 12:30 p.m. at The Lodge in Des Peres, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine and gross motor skill development.

Nicole’s Nook: Journaling with myMemoir

In this month’s blog, Nicole Weckherlin, OTR/L reviews another one of her favorite apps, myMemoir. Many children start or end their school day with journaling, and this very simple app enables them to complete that task on the iPad, thus eliminating some of the fine motor demands which children with NF1 often struggle with.

NF Center Hosts Missouri House Delegation

Members from the State of Missouri House of Representatives came to visit the Washington University NF Center this week to learn more about Neurofibromatosis. Joined by several of our patient families, the delegates heard personal stories about the impact that NF1 has had on their lives.

New Mechanism for NF1 Brain Cell Growth Control Identified

Exciting new studies spearheaded by Dr. Laura Smithson, a senior postdoctoral fellow in Dr. Gutmann’s laboratory, have revealed unique mTOR complex composition in brain cells. Her findings represent a potential new therapeutic target for brain tumor treatment.

The 2016 Children’s Tumor Foundation International NF Conference

The Children’s Tumor Foundation, the leading not-for-profit organization dedicated to neurofibromatosis research and clinical care, recently hosted its premier annual NF Conference. NF experts and families convened in Austin, TX for a weekend of education and collaboration.