NF Center Researchers Spearhead International Consortium

Together with Dr. Michael Fisher at Children’s Hospital of Philadelphia, David H. Gutmann, MD, PhD has spearheaded a new groundbreaking project, Synodos for NF1 Research Consortium, recently funded by the Children’s Tumor Foundation.

Patient Spotlight: Garrett’s NF1

Garrett Dohlke was diagnosed with Neurofibromatosis type 1 (NF1) when he was just 5 years old. Garrett’s family had never heard of NF1 and was devastated. Read about Garrett’s journey with NF1 and how he overcame many of the challenges associated with the condition.

NF Highlighted at 20th Annual Society for Neuro-Oncology Meeting

Basic and clinical science advances in NF1 were featured prominently at the recent Society for Neuro-Oncology meeting. Presentations focused on improving outcomes for children with optic pathway gliomas and discovering new treatments for malignant cancers in NF1.