Researchers Separate NF1/RAS Function in Brain Stem Cells

Children with Neurofibromatosis type 1 (NF1) are prone to the development of clinical problems that reflect abnormalities in both nerve cell (learning and behavior) and glial cell (brain tumors) function.  In this regard, nerve cells and glial cells originate from stem cells in the brain (called neural stem cells); however, it was not known how […]

Patient Spotlight: Molly McNeill

Molly McNeill is eight, and was diagnosed with NF1 four years ago. She was born with several café-a-lait spots, so we began to watch for development of a second NF symptom. Her pediatric ophthalmologist observed Lisch nodules on her irises when Molly was four, and a diagnosis of NF1 (spontaneous mutation) was confirmed by Dr. […]

Washington University NF Center to Hold Research Symposium April 1, 2016

We are pleased to announce that the third biennial Washington University Neurofibromatosis Center Research Symposium will take place on Friday, April 1st, 2016 at the Eric P. Newman Education Center (EPNEC) located on the campus of the Washington University School of Medicine in St. Louis, MO. Dr. David H. Gutmann, Director of the Washington University […]

Courtney’s Corner: Improving Leg Strength

Continuing my focus on increasing strength and endurance to enable your child with NF1 to participate in sports and other activities, this month I will be taking things from the core down to the ground. If the core is solid, the next place for strengthening to improve balance and agility are the legs. The legs can be […]