We’ve updated the NF Clinical Trials section of our website via clinicaltrials.gov. Studies that have recently been added include:
Internet Support Group for Parents of a Child With Neurofibromatosis Type 1Cabozantinib for Plexiform Neurofibromas (PN) in Subjects With NF1 (16 Years+)MEK Inhibitor PD-0325901 Trial in Adolescents and Adults With NF1
Study of Imatinib Mesylate in Neurofibromatosis Type I Patients Aged 2 to 21 With Plexiform Neurofibromas
Transformation of Plexiform Neurofibromas to Malignant Peripheral Nerve Sheath Tumors in Neurofibromatosis Type 1
A Trial of Ganetespib Plus Sirolimus: Phase 1 Includes Multiple Sarcoma Subtypes and Phase 2 MPNST
Ophthalmological Screening and Follow-up of Optic Pathway Gliomas in Children With Neurofibromatosis Type 1
Clinical trials are an exciting and important opportunity for people with NF1 and NF2 to make a difference in their own lives as well as the lives of others affected with NF1 and NF2. When you participate in a clinical trial or study you are:
- Receiving the most advanced care.
- Giving to future generations of people living with NF1 and NF2.
- Helping to change the way we practice medicine.
If you are interested in learning more about the importance of participating in clinical trials or about clinical trials in general, please visit NF Clinical Trial Facts.