News Articles and Health Updates

Read the latest news about scientific breakthroughs, clinical findings and special events benefiting neurofibromatosis research.

Washington University NF Center Researchers Examine Methods to Engage Individuals with NF1 Worldwide for Research

The Internet provides new opportunities to recruit people with rare medical conditions to online patient registries for research. However, there...

NF symposium to focus on tumor disorders

The following article originally appeared in the Record on April 24, 2014 and was written by Michael C. Purdy A...

Painful Skin Tumors in Adults with NF1

Monique Kumar, MD, and colleagues recently reported on the occurrence of a painful skin tumor, called a glomus tumor, in...

Washington University NF Center Trainee Presents Research Findings at National Meeting

Graduate student, Anne C. Solga, MS, has been completing exciting new work on the role of the tumor microenvironment in...

New Study Uses the Fruit-Fly to Understand NF2 Gene Function

Investigators at the University of Chicago employed the common house fly (Drosophila) as a model system for determining  how genetic...

Washington University NF Center Researchers Define Measures for Evaluating Low Tone Muscle in Children with NF1

Nearly half of all children with NF1 have low tone (hypotonia). A recent study at the Washington University NF Center...

Researchers Define Outcome Measures for NF1-Associated Optic Pathway Glioma Clinical Trials

The Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration was formed to standardize the way clinical investigators determine the...

Gender Influences Symptoms of NF1

The following article originally appeared in the Record on February 6, 2014 and was written by Michael C. Purdy A...

Washington University NF Center Researchers Study the Effect of Reducing Tumor Blood Vessel Function to NF2-Associated Tumors

Individuals with Neurofibromatosis Type 2 (NF2) are prone to developing brain tumors, including vestibular schwannomas and meningiomas. While vestibular schwannomas...

Washington University NF Center Researchers Identify New Mutation in Malignant Peripheral Nerve Sheath Tumors

Angela C. Hirbe, MD, PhD and her colleagues at the Washington University NF Center and the University of California –...