Patient Resources

The following neurofibromatosis web pages, videos and brochures are designed to answer patient questions and assist them in better understanding this complex genetic condition.

Web content

• What is Neurofibromatosis (NF)?
• What is NF1?
• What is NF2?
• Neurofibromas
• Optic Nerve Tumors
• [Video] When to Worry About Cancer in NF1
• Learning Disabilities

Printable brochures & booklets (pdfs)

• Your Child’s Diagnosis of NF1
• Addressing Academic Concerns
• Executive Function in NF1
• Living with NF1: Young Adults
• Living with NF1: Adults
• Talking About NF1: Teens
• Transitioning to Adulthood with NF1
• Talking About NF1: Adults