Patient Care News and Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

NF Center Patient Receives NF Hope Award

NF Center patient, Elana Loftspring, was awarded the NF Hope Award at the recent NF Hope Concert in Las Vegas on October 23rd. This prestigious award is given to someone in the NF community “who has risen above their NF diagnosis to make a difference for others living with NF.”

Nicole’s Nook: Apple iPad Accessibility Features

In this month’s Nicole’s Nook, Nicole Weckherlin, St. Louis Children’s Hospital Occupational Therapist, discusses Apple’s built-in accessibility features which make reading, typing and navigating the iPad easier and faster.

NF Center Heads to FuNFest!

The 6th annual FuNFest was held a month earlier this year.  The date was moved up by the hosts, Amanda MORE »

Nicole’s Nook: Chromebooks as a Learning Tool

In this month’s Nicole’s Nook, learn more about the accessibility features and functionality of the Chromebook. St. Louis Children’s Hospital Occupational Therapist, Nicole Weckherlin, OTR/L, provides tips and tricks to help your child make the most of their Chromebook experience.

Nicole’s Nook: GoWorksheet to Enhance Learning

It’s back to school time and I want to introduce a new productivity app that can benefit many students. Some MORE »

YOU’RE INVITED: Club NF Heads to FuNFest!

The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation, will host our next Club NF event at the 2016 FuNFest event in Vandalia, IL! Join us at this special annual fundraiser, sponsored by NF Center patient, Jordan Walk, and her family, to help raise funds to further NF research at the Washington University NF Center.

Music-Motor Therapy Program Improving the Lives of Toddlers with NF1

The Washington University NF Center and Jazz St. Louis recently wrapped up another successful Beat NF session. This unique music-motor therapy program geared toward toddlers with NF1 utilizes jazz music and motor therapy to help them overcome developmental delays commonly encountered by children with NF1

YOU’RE INVITED: Club NF Yoga & Swimming

Join us for a morning of yoga and swimming at the next Club NF event, on Saturday, August 6, from 9:30 a.m. – 12:30 p.m. at The Lodge in Des Peres, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine and gross motor skill development.

Nicole’s Nook: Journaling with myMemoir

In this month’s blog, Nicole Weckherlin, OTR/L reviews another one of her favorite apps, myMemoir. Many children start or end their school day with journaling, and this very simple app enables them to complete that task on the iPad, thus eliminating some of the fine motor demands which children with NF1 often struggle with.

NF Center Volume 2, 2016 Newsletter

Check out the NF Center Volume 2, 2016 newsletter (pdf) to read about the NF Center’s 3rd biennial Research Symposium, recent research driving us toward personalized treatment for people with NF1, and the JazzTimes article highlighting Beat NF, our music-motor therapy program for toddlers with NF1.