Patient Care News and Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

YOU’RE INVITED: Club NF Heads to FuNFest!

The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation, will host our next Club NF event at the 2016 FuNFest event in Vandalia, IL! Join us at this special annual fundraiser, sponsored by NF Center patient, Jordan Walk, and her family, to help raise funds to further NF research at the Washington University NF Center.

Music-Motor Therapy Program Improving the Lives of Toddlers with NF1

The Washington University NF Center and Jazz St. Louis recently wrapped up another successful Beat NF session. This unique music-motor therapy program geared toward toddlers with NF1 utilizes jazz music and motor therapy to help them overcome developmental delays commonly encountered by children with NF1

YOU’RE INVITED: Club NF Yoga & Swimming

Join us for a morning of yoga and swimming at the next Club NF event, on Saturday, August 6, from 9:30 a.m. – 12:30 p.m. at The Lodge in Des Peres, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine and gross motor skill development.

Nicole’s Nook: Journaling with myMemoir

In this month’s blog, Nicole Weckherlin, OTR/L reviews another one of her favorite apps, myMemoir. Many children start or end their school day with journaling, and this very simple app enables them to complete that task on the iPad, thus eliminating some of the fine motor demands which children with NF1 often struggle with.

NF Center Volume 2, 2016 Newsletter

Check out the NF Center Volume 2, 2016 newsletter (pdf) to read about the NF Center’s 3rd biennial Research Symposium, recent research driving us toward personalized treatment for people with NF1, and the JazzTimes article highlighting Beat NF, our music-motor therapy program for toddlers with NF1.

Nicole’s Nook: App Spotlight

In this month’s Nicole’s Nook blog, Nicole Weckherlin, OTR/L, showcases another one of her favorite apps, Co:Writer, a great app for word processing and document creation. With features like text-to-speech, word prediction and topic dictionaries, it is an extremely useful app for children with NF1.

YOU’RE INVITED: Club NF Paints Pottery

Join us for a morning of pottery design and painting at the next Club NF event, Club NF Paints Pottery, on Saturday, June 11, from 9:30 a.m. – noon at Pottery Hollow in Kirkwood, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine motor skill development.

NF Center Forms New Collaboration with Stanford Neuro Oncologist

Cynthia J. Campen, MD, Pediatric Neuro Oncologist and Clinical Assistant Professor of Neurology and Neurological Sciences at Stanford University, traveled to St. Louis in April to learn more about the NF Center’s approach to providing exceptional care through groundbreaking research.

Nicole’s Nook: Doing Math on the iPad

In this month’s Nicole’s Nook blog, Nicole Weckherlin, OTR/L recommends an app that makes completing math worksheets on the iPad easier. Doing math on the iPad is a common challenge for children, and this app allows children to plot out their work in a much more legible and visual platform.

YOU’RE INVITED: Spring 2016 Beat NF

Join us for a one-of-a-kind jazz music experience, seamlessly integrated with gross motor and social skill activities. Beat NF, a jazz music-motor therapy program for toddlers and young children (ages 2 – 5 years) with NF1, was developed by a team of St. Louis Children’s Hospital therapists and Jazz St. Louis musicians.