Patient Care News and Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

Symposium Sneak Peek: Dr. Elaine Mardis Discusses Advanced Sequencing Methods to Better Understand NF1

Elaine Mardis, PhD, is Professor in the Department of Genetics at Washington University as well as Co-Director of The Genome MORE »

UPDATE: NF Clinical Trials for the Winter 2014 Quarter

We’ve updated the NF Clinical Trials section of our website via Studies that have recently been added include: A MORE »

Grad Student Profile: Anne Solga – Studying Non-Cancerous Cells in Optic Pathway Gliomas

Anne Solga is studying the role of non-cancerous cells in NF1-associated optic glioma as an initial step towards identifying new MORE »

Bravelets™ for Valentine’s Day

Consider giving someone you love a Bravelet for Valentine’s Day! With each item purchased, $10 will be donated to the Washington University NF Center in MORE »

Club NF Creates Art!

On February 1, 2014, the Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation hosted their MORE »

Symposium Sneak Peek: Dr. Sean Morrison Discusses Stem Cells and NF1

The Washington University NF Center is pleased to welcome Dr. Sean Morrison as one of the 2014 Washington University NF MORE »

NEW STUDY: Social and Behavioral Health in NF1

Researchers in the Washington University NF Center are currently recruiting both adults and children with NF1 to better understand the MORE »

Washington University NF Center Toddlers Show Progress After Beat NF

Children with NF1 can experience a range of developmental delays, including problems with gross motor skills and trouble learning how MORE »

Nicole’s Nook: Apps that are More than Recreation

The iPad often gets a bad rap.  It’s too trendy, it’s too techy, it’s too mainstream, and it’s too gamey.  MORE »

UPDATE: Clinical Research Studies at the Washington University NF Center – Winter 2014

Curious how our current clinical studies are going? Find out below! NF1 Genome Project (NF1GP) We have obtained 354 blood samples from individuals MORE »