NF Center Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

A Message of Hope from the Director

Dear NF Community, Family and Friends, We are living in unprecedented times. We are being asked to limit our social MORE »

NF Center 2020, Volume 1 Newsletter Published

Check out the NF Center 2020, Volume 1 newsletter (pdf) to read about new research on NF1 brain tumors, learn MORE »

Courtney’s Corner: Learning to Ride a Bike

Soon the weather will start to warm up and Spring will be right around the corner! That means it’s time MORE »

Message from the Director

It has been another exciting and productive year of advances in research and clinical care at the Washington University Neurofibromatosis MORE »

Forward Strides 4NF Committee Fundraises for the Washington University NF Center

Recently, the Forward Strides 4NF committee visited the Washington University NF Center to present a $20,000 check. It was the MORE »

Walk Family’s FuNFest Raises Money for NF Research

On November 27, 2019, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center MORE »

The NF Center Wraps Up a Successful Beat NF Fall Session!

The Washington University Neurofibromatosis (NF) Center, in collaboration with our partners at Jazz St. Louis and the St. Louis Children’s MORE »

NF Center Welcomes a New Staff Member: Erika Ramirez

The Washington University NF Center is delighted to welcome Mrs. Erika Ramirez in her new role of full-time Clinical Nurse MORE »

Nicole’s Nook: SnapType Eases Handwriting Struggles

One of my favorite, easy-to-use, kid friendly apps is SnapType, an app developed by an occupational therapy student. SnapType is MORE »

NF Center Welcomes New Faculty Member: Amy Armstrong

The NF Clinical Care Program at St. Louis Children’s Hospital welcome Dr. Amy Armstrong to the Division of Pediatric Hematology MORE »