NF Center Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

May is NF Awareness Month!

May is NF Awareness Month, join the Washington University NF Center in raising awareness, and supporting education and research, throughout MORE »

Gutmann Receives Advocate of Hope Award

Honored for dedication to finding causes, treatments for common genetic disease David H. Gutmann, MD, PhD, the Donald O. Schnuck MORE »

FDA Approves First Therapy for Children with NF1

On April 10, 2020, the US Food and Drug Administration (FDA) approved the drug selumentinib (Koselugo) for people with Neurofibromatosis MORE »

Give STL Day for NF is May 7th

Donate On Thursday, May 7, 2020, the St. Louis Community Foundation will host its annual Give STL Day, a 24-hour MORE »

A Message of Hope from the Director

Dear NF Community, Family and Friends, We are living in unprecedented times. We are being asked to limit our social MORE »

NF Center 2020, Volume 1 Newsletter Published

Check out the NF Center 2020, Volume 1 newsletter (pdf) to read about new research on NF1 brain tumors, learn MORE »

Courtney’s Corner: Learning to Ride a Bike

Soon the weather will start to warm up and Spring will be right around the corner! That means it’s time MORE »

Message from the Director

It has been another exciting and productive year of advances in research and clinical care at the Washington University Neurofibromatosis MORE »

Forward Strides 4NF Committee Fundraises for the Washington University NF Center

Recently, the Forward Strides 4NF committee visited the Washington University NF Center to present a $20,000 check. It was the MORE »

Walk Family’s FuNFest Raises Money for NF Research

On November 27, 2019, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center MORE »