NF Center Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

UPDATE: NF Clinical Trials – Summer 2020

Check out the NF Clinical Trials section of our website, which was recently updated to include current NF-related trials from clinicaltrials.gov. Some new MORE »

NF Center 2020, Volume 2 Newsletter Published

Check out the NF Center 2020, Volume 2 newsletter (pdf) to read about new research on NF1 brain tumors and MORE »

Patient Spotlight: Daniel

At six months of age, Daniel Crum was brought to the Washington University NF Clinical Program at St. Louis Children’s MORE »

May is NF Awareness Month!

May is NF Awareness Month, join the Washington University NF Center in raising awareness, and supporting education and research, throughout MORE »

Gutmann Receives Advocate of Hope Award

Honored for dedication to finding causes, treatments for common genetic disease David H. Gutmann, MD, PhD, the Donald O. Schnuck MORE »

FDA Approves First Therapy for Children with NF1

On April 10, 2020, the US Food and Drug Administration (FDA) approved the drug selumentinib (Koselugo) for people with Neurofibromatosis MORE »

Give STL Day for NF is May 7th

Donate On Thursday, May 7, 2020, the St. Louis Community Foundation will host its annual Give STL Day, a 24-hour MORE »

A Message of Hope from the Director

Dear NF Community, Family and Friends, We are living in unprecedented times. We are being asked to limit our social MORE »

NF Center 2020, Volume 1 Newsletter Published

Check out the NF Center 2020, Volume 1 newsletter (pdf) to read about new research on NF1 brain tumors, learn MORE »

Courtney’s Corner: Learning to Ride a Bike

Soon the weather will start to warm up and Spring will be right around the corner! That means it’s time MORE »