Patient Care News and Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

Nicole’s Nook: Educational App Review

Currently there are over 2 million apps available to download in the App Store.  As you can guess, that number MORE »

Patient Spotlight: Jordan’s Journey with Neurofibromatosis

Jordan’s journey with Neurofibromatosis (NF) started at her 10-month check up.  Our pediatrician noticed that Jordan had over six tan MORE »

2017 FuNFest Raises Money for NF Research

On November 22, 2017, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center MORE »

Clinical Research Highlight in the NF Center

To better understand how behavioral symptoms develop in children with NF1, Dr. Stephanie Morris is leading a clinical study to MORE »

Nicole’s Nook: iPad Cases and Accessories

In this month’s blog, I thought it would be worthwhile to revisit the many iPad cases and accessories out there. MORE »

Patient Spotlight: Alexandra Schroeder

Alexandra’s introduction to the world of Neurofibromatosis began when she was only three years old. Unexplained spots and fevers would ultimately lead her family to seek the care of Dr. David Gutmann, at the Washington University NF Center. With an unrelenting optimism leading her to follow her dreams, read more about Alexandra’s path from diagnosis to adulthood.

Patient Spotlight: Emily Medlock

Growing up with seven siblings, none of whom had NF1 was tough. You see, when I was an infant, I MORE »

Nicole’s Nook: Creating books with the Book Creator App

Reading on a device can be much more appealing to some students. It can engage them and motivate them in MORE »

SLCH Radio Rounds Podcast with Dr. David Gutmann

This article was originally published on the SLCH Radio Rounds website in June 2017. The Neurofibromatosis Comprehensive Care Team at MORE »

Patient Spotlight: Trevor Vail

My little brother Trevor is 13 and has NF1. In fact, so does his dad, Kenny and other members of MORE »