NF Center Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

Beat NF Highlighted During the Jazz St. Louis 25th Anniversary Celebration

On October 2, 2020, Jazz St. Louis celebrated their 25th Anniversary with a virtual party broadcast live on YouTube. The MORE »

Dr. Morris Named Section Head of Pediatric General Neurology

We are delighted to announce that Dr. Stephanie M. Morris has been named Section Head of Pediatric General Neurology at MORE »

Teen NF is Going Virtual for Fall 2020!

The Washington University NF Center is excited to announce our Teen NF, Fall 2020, Session will be going virtual! Since MORE »

UPDATE: NF Clinical Trials – Summer 2020

Check out the NF Clinical Trials section of our website, which was recently updated to include current NF-related trials from clinicaltrials.gov. Some new MORE »

NF Center 2020, Volume 2 Newsletter Published

Check out the NF Center 2020, Volume 2 newsletter (pdf) to read about new research on NF1 brain tumors and MORE »

Patient Spotlight: Daniel

At six months of age, Daniel Crum was brought to the Washington University NF Clinical Program at St. Louis Children’s MORE »

May is NF Awareness Month!

May is NF Awareness Month, join the Washington University NF Center in raising awareness, and supporting education and research, throughout MORE »

Gutmann Receives Advocate of Hope Award

Honored for dedication to finding causes, treatments for common genetic disease David H. Gutmann, MD, PhD, the Donald O. Schnuck MORE »

FDA Approves First Therapy for Children with NF1

On April 10, 2020, the US Food and Drug Administration (FDA) approved the drug selumentinib (Koselugo) for people with Neurofibromatosis MORE »

Give STL Day for NF is May 7th

Donate On Thursday, May 7, 2020, the St. Louis Community Foundation will host its annual Give STL Day, a 24-hour MORE »