Patient Care News and Updates

Read the latest news related to the NF Center’s clinical care and complementary care programs, therapy recommendations, patient highlights, and more.

SLCH Radio Rounds Podcast with Dr. Stephanie Morris

St. Louis Children’s Hospital weekly podcast, Radio Rounds, is a free series for healthcare professionals featuring Washington University pediatric specialists. MORE »

Nicole’s Nook: Read, Markup & Share PDFs with iAnnotate

In this month’s Nicole’s Nook, Nicole Weckherlin, St. Louis Children’s Hospital Occupational Therapist, highlights one of her favorite apps, iAnnotate, for reading, annotating, and sharing PDFs.

Nicole’s Nook: Taking Notes & Recording With AudioNote

Taking notes in class can be challenging and frustrating for many students with NF1 who may have diminished fine motor skills and struggle with learning and attention deficits. In this month’s Nicole’s Nook, Nicole Weckherlin, St. Louis Children’s Hospital Occupational Therapist, discusses how to use AudioNote, an app used to record lectures, and take handwritten notes.

Message From the Director

In this message from the director, Dr. David H. Gutmann recaps the many new developments from our twelfth year as a multi-disciplinary clinical care and research enterprise. From welcoming new faculty and staff, to outlining research progress, he reviews the NF Center’s highlights from 2016 and looks forward to a productive year ahead.

NF Center 2016 Volume 3 Newsletter Published

The 2016 Volume 3 NF Center newsletter has been released. Read about recent fundraising events held by the families of NF Center Clinical Program patients to support NF awareness and research. Also learn about Gutmann Laboratory research grants and recent research linking NF1 to ASD trait burden.

Walk Family’s FuNFest Raises Money for NF Research

On November 11, 2016, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center to celebrate another successful fuNFest event. This year’s fuNFest raised an impressive $27,574.64, which will fund Gutmann Laboratory research initiatives aimed at developing personalized medicine approaches for people affected by NF.

Neurobiology of Disease in Children (NDC) Holds NF Symposium

In conjunction with this year’s Child Neurology Society meeting, the Neurobiology of Disease in Children (NDC) held its 16th annual symposium to review advances in pediatric neurologic disease. The topic for the 2016 NDC symposium was Neurofibromatosis (NF), the very same topic discussed at the first NDC symposium held in 2001.

NF Center Patient Receives NF Hope Award

NF Center patient, Elana Loftspring, was awarded the NF Hope Award at the recent NF Hope Concert in Las Vegas on October 23rd. This prestigious award is given to someone in the NF community “who has risen above their NF diagnosis to make a difference for others living with NF.”

Nicole’s Nook: Apple iPad Accessibility Features

In this month’s Nicole’s Nook, Nicole Weckherlin, St. Louis Children’s Hospital Occupational Therapist, discusses Apple’s built-in accessibility features which make reading, typing and navigating the iPad easier and faster.

NF Center Heads to FuNFest!

The 6th annual FuNFest was held a month earlier this year.  The date was moved up by the hosts, Amanda MORE »