April 2nd is World Autism Acceptance Day, kicking off Autism Acceptance Month. While most people are generally aware of autism, a major problem facing people and their families who live with autism is a lack of acceptance and understanding. For this reason, the Washington University Neurofibromatosis (NF) Center joins with the greater autism community to […]
In conjunction with this year’s Child Neurology Society meeting, the Neurobiology of Disease in Children (NDC) held its 16th annual symposium to review advances in pediatric neurologic disease. The topic for the 2016 NDC symposium was Neurofibromatosis (NF), the very same topic discussed at the first NDC symposium held in 2001.
Join us for a morning of yoga and swimming at the next Club NF event, on Saturday, August 6, from 9:30 a.m. – 12:30 p.m. at The Lodge in Des Peres, MO. St. Louis Children’s Hospital occupational and physical therapists will work with children to promote fine and gross motor skill development.
Check out the NF Center Volume 2, 2016 newsletter (pdf) to read about the NF Center’s 3rd biennial Research Symposium, recent research driving us toward personalized treatment for people with NF1, and the JazzTimes article highlighting Beat NF, our music-motor therapy program for toddlers with NF1.
Cynthia J. Campen, MD, Pediatric Neuro Oncologist and Clinical Assistant Professor of Neurology and Neurological Sciences at Stanford University, traveled to St. Louis in April to learn more about the NF Center’s approach to providing exceptional care through groundbreaking research.
It was months in the making, with film crews set up in the research laboratory, at our clinical program at St. Louis Children’s Hospital and even at our jazz music-motor therapy program, Beat NF. The HEC-TV associates have been hard at work, recording candid interviews and capturing meaningful moments among the Washington University NF Center physicians, therapists, researchers, patients […]
The 2014 – 2015 school year is upon us! NF1 is the most common disorder you’ve probably never heard of–that is what we tell people the first time they learn about NF1. Because NF1 is not a commonly known disorder, it is likely that the teachers and school administrators at your school also have not […]
Children with NF1 commonly experience a range of developmental delays that can negatively impact their daily lives. Early detection and treatment of these delays provides children with NF1 their best chances of success. In order to help families detect potential delays as early as possible, we have created child development checklists of expected developmental […]
The Washington University NF Center was recently featured as the cover story in the Washington University publication Innovate. The article introduces readers to Neurofibromatosis as a disorder and describes how clinicians and researchers in the Washington University NF Center work together to provide NF research, multidisciplinary clinical care and educational and community resources for families […]
Join the Washington University NF Center at NeuroDay 2014 at the St. Louis Science Center! Team NF is heading to NeuroDay 2014 at the St. Louis Science Center on March 8 from 10AM to 4PM. NeuroDay is an annual expo featuring free hands-on activities focused on learning about the brain and cutting-edge brain research. Featured […]