Forward Strides 4NF Committee Fundraises for the Washington University NF Center

Recently, the Forward Strides 4NF committee visited the Washington University NF Center to present a $20,000 check. It was the largest yearly fundraising total since their inception.

Forward Strides 4NF is a charity that was started in 2016 by Gina Wilburn to honor her daughter and husband, who both have Neurofibromatosis (NF). This year the committee celebrated their 5th anniversary with a Superhero theme, and hosted over 200 registered walkers, with more than 30 volunteers. Entertainment at the event included an obstacle course slide, music, food and beverages donated from local restaurants, as well as superhero mascots to cheer participants at the finish line. Additionally, both a raffle and silent auction, which included many amazing items, has proven to be a huge attraction every year.

The Washington University NF Center extends its heartfelt gratitude to Gina and the Forward Strides 4 NF committee for their continued support.

Walk Family’s FuNFest Raises Money for NF Research

On November 27, 2019, Brian and Amanda Walk and their daughters, Jordan and Bella, visited the Washington University NF Center to celebrate another successful fuNFest event.

FuNFest is a family-friendly festival designed to create awareness about NF and to raise funds for NF research. The event includes games, obstacle course, music, a live auction, and silent auction bidding.

This year’s fuNFest raised a remarkable $24,894.53, which will fund Gutmann Laboratory research initiatives aimed at developing personalized medicine approaches for people affected by NF. The Washington University NF Center extends its heartfelt gratitude to Amanda and Brian Walk, who worked tirelessly to plan this event.

Our patients and their families are an integral part of our mission to provide exceptional care through groundbreaking research. Because of families like the Walks, we are able to conduct cutting-edge research and provide outstanding complementary care resources.