NF Center Forms New Collaboration with Stanford Neuro Oncologist

The Washington University NF Center had a special visitor in April. Cynthia J. Campen, MD, Pediatric Neuro Oncologist and Clinical Assistant Professor of Neurology and Neurological Sciences at Stanford University, traveled to St. Louis to visit Dr. David H. Gutmann and his team of NF specialists, with the goal of learning about our approach to providing exceptional care through groundbreaking research.

Dr. Campen will be opening Stanford’s first NF Center and is focused on bringing the best care to those affected by NF1 in her area. She has chosen the Washington University NF Center as a model
for offering the most comprehensive and evidence-based care to her pediatric patients. Over the course of three days, Dr. Campen met with NF Center collaborators spanning a wide variety of disciplines, spent a day in our clinic at St. Louis Children’s Hospital, and spoke with key NF Center staff members to learn about our research studies, multidisciplinary patient care model and complementary care programs.

By introducing Dr. Campen to the Washington University NF Center’s network of specialists, we have opened the door for future collaborations between the two medical campuses. Given the prevalence of NF1 (1:2,500 people affected) and paucity of centers specializing in the care of individuals with NF1, there is a significant need for academic institutions to form strong working relationships in order to accelerate the pace of scientific discovery and identify more effective treatments for this common genetic condition. We look forward to continuing to work with Dr. Campen and her team at Stanford.

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From left to right: Courtney M. Dunn, PT, DPT, Cynthia J. Campen, MD, David H. Gutmann, MD, PhD, and Jessica Heuring, BSN, RN, in the Washington University NF Center Clinic at St. Louis Children’s Hospital.