Message from the Director – Q1 2015

It is that time of year when everyone has returned from celebrating another year of joy with loved ones and family. As we usher in 2015, our family at the Washington University Neurofibromatosis (NF) Center has enjoyed another successful year of achievement and accomplishment. We are delighted to have been featured recently in a special […]

Researchers Discover New Treatments for NF1 Optic Glioma

Children with Neurofibromatosis type 1 (NF1) develop optic gliomas which can cause reduced vision. Currently, treatments for these brain tumors involve the use of chemotherapies originally designed to slow the growth of similar cancers in children without NF1. With the identification of the NF1 gene, it is possible to develop treatments specifically targeted to the kinds […]

YOU’RE INVITED: Club NF Goes Surfing!

The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is pleased to announce our first 2015 Club NF event – Club NF Goes Surfing! Please join us at Core 3 Fitness Studio in Brentwood, MO on Saturday, February 7 from 10 a.m. – noon for an exciting morning of indoor surfing and yoga. During this event, […]

Researchers Identify New Genetic Risk Factor for NF1-Associated Glioma

A new study, spearheaded by Dr. Joshua Rubin and his colleagues, found that subtle changes in the genes of children with NF1 may increase their risk of developing a brain tumor (glioma). Using a combination of Nf1 genetically-engineered mice and NF1 patient DNA samples, they found that slight changes, termed genetic polymorphisms, in the ADCY8 […]

JOIN US: Dine Out for NF Night at JJ Twigs – O’Fallon, MO!

One of our Washington University NF Center families is hosting a “Dine Out for NF” night at their restaurant, JJ Twigs (O’Fallon, MO location only), on Tuesday, January 20 from 4 – 10 p.m. Present the flyer (at right) during your visit, and have 15% of the sale donated to the Washington University NF Center to further […]