SAVE THE DATE – Join Us at Fall 2014 Beat NF!

The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation and Jazz St. Louis, is proud to host the fall 2014 Beat NF Together 6-week program starting on Wednesday October 15 at the Harold and Dorothy Steward Center for Jazz in downtown St. Louis.

Beat NF is a toddler and parent jazz music therapy group focused on developing social skills, attentions skills and motor skills in toddlers with NF1, while fostering parent-child interactions and jazz appreciation. Our goal is to provide an opportunity for caretakers and toddlers to strengthen personal interactions while developing skills often delayed in children with NF1 through the power of music. Each session of Beat NF affords toddlers a chance to improve social skills by singing together, work on attention skills through group music creation and practice motor skills using dance and play. In addition to music therapy, toddlers and caretakers hear jazz music from local artists and learn about jazz as an art form and creative outlet.

The Washington University NF Center is very excited for the upcoming Beat NF sessions and we hope you can join us! If you are interested in attending, please contact Kirsten Brouillet at brouilletk@neuro.wustl.edu.

Nicole’s Nook: Choosing a Case & Accessories for Your iPad

Choosing your iPad can be a difficult and overwhelming task. There are so many options to choose from, including generations, size, data or Wi-Fi connection. What you may not realize is that deciding on a case to protect your iPad is an equally important decision.  In today’s blog, I thought it would be worthwhile to take a look at the many cases and accessories available for your iPad.

If you are looking for durability and protection, especially for those younger users or those who tend to be a little tougher on devices, I would recommend:

If you are looking for something more portable, perhaps with a keyboard, some great options include:

Other iPad accessories I find helpful include:

  • Apple Camera Connection Kit:  imports photos and videos from a digital camera using either USB cable or directly from an SD card*
  • Apple Digital AV Adapter:  mirrors whatever’s on your iPad or iPhone 4S screen on your HDTV or HDMI-compatible display in up to 1080p HD*
  • Apple VGA Adapter:  mirrors whatever’s on your iPad or iPhone 4S screen on your VGA-equipped TV, display, projector or other compatible display*

Protect and maximize your iPad by finding the case that best suits your needs and use, because after all, your iPad is only as good as its case!

* If your device requires the lightning adapter, use the Lightning to VGA Adapter

Nicole Weckherlin, OTR/L

Washington University NF Center Fall 2014 Newsletter

Fall 2014 Newsletter

Hot off the press – check out our fall 2014 newsletter!

Inside this issue:

  • Washington University NF Center Family Celebrates Final Day of Chemotherapy
  • Researchers Publish Findings on New Plexiform Neurofibroma Treatment
  • Beat NF: Understanding how Music Therapy Helps Children with NF1
  • Join us at 2014 fuNFest!
  • And More!

Be sure to take a look at our previous newsletters as well!

Club NF Original Artwork Ribbon Cutting Event

LabTeamNF

On Wednesday, August 27th at 1:15 p.m., members of the Gutmann Laboratory gathered in the hallway outside of the Washington University NF Center for a ribbon cutting ceremony with local artist Vicki Friedman. Ms. Friedman worked with our families at the February 2014 Club NF event entitled a “Day of Art – Focusing on self-expression and creativity”.  During this art therapy event, held at the St. Louis Artists’ Guild in Clayton, MO, attendees moved through stations and worked with several mediums of art, including painting, collage and modelling clay.

Ms. Friedman supervised a group watercolor mural on a large piece of cloth which we displayed at the 2014 Washington University NF Center Research Symposium. Symposium attendees were in awe of this beautiful, original piece created primarily by children with NF1. The artwork has since been mounted and framed, and will be permanently displayed in our hallway on the 2nd floor of the McMillan Building on the Washington University Medical School campus.

VickiRibbonVicki Friedman started the Arts as Healing Foundation over 10 years ago, offering free art classes to cancer patients and those that support them.  Ms. Friedman is an artist and medical illustrator and has a bachelor’s degree in fine arts and a Master’s in Education and Art.

Club NF is a free, bi-monthly, play-based therapy program for children with NF1 in kindergarten through 8th grade. Our St. Louis Children’s Hospital therapists use everyday activities to work on skills often delayed in children with NF1. Club NF is designed to give our children the tools they need to be successful now and in the future. To learn more about our Club NF events, please visit the Club NF section of our website.

Kirsten Brouillet
Club NF Event Coordinator

SAVE THE DATE: Club NF Goes to fuNFest!

The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce our October 2014 Club NF event – Club NF Goes to FuNFest!

Please join us on Saturday, October 4, at the Walk Family’s 4th annual FuNFest which will also include Club NF. FuNFest is an annual fundraiser sponsored by the Walk family at Gatch Lake — near Vandalia, Illinois. FuNFest includes games, bounce houses, face painting, a silent auction and a bake sale along with the infamous Cow Patty Bingo! Food and drinks are available for purchase.

All proceeds are donated to St. Louis Children’s Hospital Foundation/Washington University NF Center. To help support this exciting event, Club NF will travel to FuNFest. Team NF Therapists will lead games and activities that reinforce core strength and gross motor skills — skills frequently delayed in children with NF1.

For more information, check out our flyer or contact Kirsten Brouillet at brouilletk@neuro.wustl.edu.

If you are interested in riding a free charter bus from the Washington University Danforth Campus (leaving campus at 9:30 a.m. and returning to campus at about 5:30 p.m.), please contact Kirsten Brouillet no later than September 29.