SAVE THE DATE – Join Us at Fall 2014 Beat NF!

The Washington University NF Center, in collaboration with the St. Louis Children’s Hospital Foundation and Jazz St. Louis, is proud to host the fall 2014 Beat NF Together 6-week program starting on Wednesday October 15 at the Harold and Dorothy Steward Center for Jazz in downtown St. Louis. Beat NF is a toddler and parent […]

Study Finds Elevated Risk of Neurological Conditions in Individuals with NF1

Researchers in the Washington University NF Center recently utilized the largest US private health insurance claims database to examine the potential association between NF1 and other chronic neurological problems. Using established diagnosis billing codes, Dr. Kimberly Johnson, PhD, MPH in the Brown School of Social Work at Washington University identified a group of 8,500 individuals […]

Nicole’s Nook: Choosing a Case & Accessories for Your iPad

Choosing your iPad can be a difficult and overwhelming task. There are so many options to choose from, including generations, size, data or Wi-Fi connection. What you may not realize is that deciding on a case to protect your iPad is an equally important decision.  In today’s blog, I thought it would be worthwhile to […]

Washington University NF Center Fall 2014 Newsletter

Hot off the press – check out our fall 2014 newsletter! Inside this issue: Washington University NF Center Family Celebrates Final Day of Chemotherapy Researchers Publish Findings on New Plexiform Neurofibroma Treatment Beat NF: Understanding how Music Therapy Helps Children with NF1 Join us at 2014 fuNFest! And More! Be sure to take a look at our previous newsletters as […]

Washington University NF Center Awarded 2014 ALSF Innovation Grant

Investigators in The Washington University NF Center were awarded a 2014 Innovation Grant from Alex’s Lemonade Stand Foundation (ALSF). This grant to David H. Gutmann, MD, PhD, will support our efforts to develop personalized (precision) medicine strategies to optimize pediatric brain tumor management. Brain tumors (low-grade gliomas) arising in children do not represent a single […]

Club NF Original Artwork Ribbon Cutting Event

On Wednesday, August 27th at 1:15 p.m., members of the Gutmann Laboratory gathered in the hallway outside of the Washington University NF Center for a ribbon cutting ceremony with local artist Vicki Friedman. Ms. Friedman worked with our families at the February 2014 Club NF event entitled a “Day of Art – Focusing on self-expression […]

SAVE THE DATE: Club NF Goes to fuNFest!

The Washington University NF Center in collaboration with the St. Louis Children’s Hospital Foundation is excited to announce our October 2014 Club NF event – Club NF Goes to FuNFest! Please join us on Saturday, October 4, at the Walk Family’s 4th annual FuNFest which will also include Club NF. FuNFest is an annual fundraiser sponsored by the Walk […]