NF Clinical Trials
Additional information is available on the NF Clinical Trial Fact sheet.
NF Clinical Trials (Updated May 2013)
Neurofibromatosis 1 Clinical Trials
General NF1 Clinical Trials
- Whole Body Magnetic Resonance Imaging with Diffusion Weighted Imaging: Potential Role in NF
- Natural History Study of Patients with Neurofibromatosis Type 1
- Neurofibromatosis Type 1 Patient Registry
- Neurofibromatosis type 1 Genome Project
- Modifying Genes in Neurofibromatosis 1
- Acceptance and Commitment Therapy for Adolescents and Young Adults with NF and Chronic Pain
- Validating Pain Scales in Children and Young Adults
Cutaneous Neurofibroma Trials
Plexiform Neurofibroma Trials
- PET/MRI in CNS and Extra-CNS Tumor Patients with NF1
- Pegintron to Treat Plexiform Neurofibromas in Children and Young Adults
- AZD6244 Hydrogen Sulfate for Children with Nervous System Tumors
- A Pilot Study of Sutent®/Sunitinib (SU11248), an Oral Multi-Targeted Tyrosine Kinase Inhibitor in Subjects With NF1 Plexiform Neurofibromas
- Pilot Study of Gleevec/Imatinib Mesylate (STI-571, NSC 716051) in Neurofibromatosis (NF1) Patient With Plexiform Neurofibromas
- Efficacy and Safety of RAD001 in Treating Plexiform Neurofibromas (PN) Associated with NF1
- Study of Tasigna/Nilotinib in NF1 Patients with Plexiform Neurofibromas
- Study of PEG-Intron for Plexiform Neurofibromas
Learning Disabilities / Attention Deficit Trials
- Trial to Evaluate the Safety of Lovastatin in Individuals with NF1
- A Randomized Placebo-Controlled Study of Lovastatin in Children with NF1
- Neurobiology and Treatment of Reading Disability in Neurofibromatosis Type 1 (NF1)
- Analysis of Stored Data Collected From Individuals Administered Neurobehavioral Assessments on IRB-Approved Protocols
- How Neurofibromatosis Type 1 Affects Schoolwork and Self-Esteem
Bone Problem Trials
- Genetic Evaluation of NF1 and Scoliosis Patients
- Effects of Physical Training on Bone and Muscle Quality, Muscle Strength, and Motor Coordination in Children With Neurofibromatosis Type 1
Malignant Peripheral Nerve Sheath Tumor (MPNST) Trials
Brain Tumor (Glioma) Trials
- PET/MRI in CNS and Extra-CNS Tumor Patients with NF1
- MicroRNAs in Patients With Neurofibromatosis Type 1
- Low-Dose and High-Dose Lenalidomide in Treating Younger Patients with Recurrent, Refractory or ProgressivePilocytic Astrocytoma or Optic Pathway Glioma
- Genetic Influences on Pediatric Brain Tumor Development in NF1
Neurofibromatosis 2 Clinical Trials
General NF2 Trials
Schwannoma Trials
- Phase II Study of Bevacizumab in Children and Young Adults with NF2 and Progressive Vestibular Schwannomas
- Using Positron Emission Tomography to Predict Intracranial Tumor Growth in Neurofibromatosis Type II Patients
- Concentration and Activity of Lapatinib in Vestibular Schwannomas
- Study of RAD001 for treatment of NF2-related Vestibular Schwannomas
Meningioma Trials

