NF Center Researcher Receives New Grant to Study Cancer Risk in NF1
Dr. Kimberly Johnson, cancer epidemiologist at the Brown School of Social Work at Washington University, recently received a grant from Alex’s Lemonade Stand to expand her studies on cancer risk in individuals with NF1.
Working with her colleagues in the Washington University NF Center, Dr. Johnson established the NF1 Patient Registry Initiative (NPRI; https://nf1registry.wustl.edu/) to better understand the risk of developing benign and malignant tumors in people with NF1. This international patient-driven registry allows individuals with NF1 to enter information about their condition in an effort to facilitate epidemiology studies.
Using this approach, Dr. Johnson aims to identify what risk factors are associated with tumor development in NF1.