What are the main reasons a person should participate in clinical trials or clinical studies?

YOU have the potential to improve the way your physicians treat people affected with NF1 and NF2. Without clinical trials and clinical studies, there will be little medical progress.

1. You get the most advanced care. Clinical outcomes for patients involved in clinical trials are better than outcomes for patients who are not enrolled in clinical trials. This is because patients who are involved in clinical trials are receiving cutting edge therapies. Yes, it is true that the medications may still be in a trial phase; however, since the government has rules in place that make it so only the most promising new treatments ever become available to people, those individuals who participate in clinical trials are receiving a medication that may one day become a standard medication for the care of people with NF1 and NF2.
2. You can give back. Participating in clinical trials and clinical studies allows individuals with NF1 and NF2 to create a better life for future generations of individuals with NF, including their own family members. What physicians and researchers learn today can only make the medical treatment options of tomorrow better.