NF Clinical Trial Facts

Understanding Clinical Trials

Clinical trials and studies are an exciting and important opportunity for people with NF1 and NF2 to make a difference in their own lives as well as the lives of others affected with NF1 and NF2. When you participate in a clinical trial or study you are:

  1. Receiving the most advanced care
  2. Giving to future generations of people living with NF1 and NF2
  3. Helping to change the way we practice medicine

Your dedication to participation, along with the tireless work of the physicians and researchers at the Washington University NF Center, makes the hope for a better future for people with NF1 and NF2 a reality. Together, we aim to:

  1. Find the best possible treatments for people living with NF1 and NF2
  2. Make life better for future generations of people living with NF1 and NF2
  3. Change the way we practice medicine

Get involved in current clinical trials

You can learn more about clinical trials and studies for people with NF by checking out this website. See our Frequently Asked Questions section below.

What is a clinical trial or clinical study?

Why does treatment for NF need to be improved?

Why are clinical trials and clinical studies the best way to improve medical treatment of NF?

Does participation in a clinical study or trial make a person a “guinea pig”?

What are the main reasons a person should participate in clinical trials or clinical studies?

What are the types of clinical trials?

What are the phases of clinical trials?

Who can participate in clinical trials?

How can I become involved in clinical trials and clinical studies?