Get Involved In Research
Participating in Clinical Trials and Clinical Studies
For a list of recently published clinical studies from the Washington University Neurofibromatosis (NF) Center, please go HERE
Physicians and researchers at the Washington University NF Center are working hard to identify new treatments and provide the most effective therapies for our patients and their families. Clinical trials and clinical studies provide the evidence necessary to improve medical care for people affected with NF1 and NF2.
Clinical trials are an exciting new opportunity for individuals who have NF. However, future advancements in treatment require the active involvement of individuals living with NF1 and NF2. By participating in a clinical trial or study, you will be on the forefront of NF treatment and will be contributing in a significant way to the development of better treatments for NF1 and NF2. While surgery and other treatments for persons with NF are standard, a clinical trial allows individuals to play a more active role in their own health care, gain access to new research treatments before they are widely available, and help others by contributing to medical research.
It is important to realize that everything we currently know about how to treat people with NF1 and NF2 has come from a clinical trial and study. People with NF have been participating in research for decades. In fact, it was the passionate involvement of families with NF1 and NF2 that led to the identification of the NF1 and NF2 genes in the 1990s. Moreover, because of their dedication, physicians have made remarkable advances in the way they manage NF-related medical problems today.
In order to find even better treatment options for people with NF1 and NF2, affected individuals must continue to participate in clinical trials and clinical studies.
· NF Clinical Trials: Learn more about the available clinical trials for Neurofibromatosis. Here you will find a list of trials currently available for individuals with NF1 and NF2.
· NF Clinical Studies: Learn more about the available clinical studies for neurofibromatosis. Here you will find a list of current studies available for individuals with NF1 and NF2.
· NF Clinical Trial Facts: Learn more about Clinical Trials and Clinical Studies. Here you will find answers to frequently asked questions (FAQs) about clinical trials and studies.