Get Involved In Research
Physicians and researchers at the Washington University NF Center are working hard to identify new treatments and to provide the most effective therapies for our patients and their families, but we need your help!
Why is my participation important?
Participating in a clinical study or trial is one of the most significant ways you can ensure a brighter tomorrow for people affected with NF1 and NF2. Everything we currently know about how to treat people with NF1 and NF2 has come from a clinical trial or study.
What are the benefits to participating in clinical studies and trials?
When you participate in a clinical study or trial you are:
(1) Receiving the most advanced care available
(2) Giving to future generations of people living with NF1 or NF2
(3) Helping to change the way we care for individuals affected with NF1 or NF2
I am interested in participating.
Please visit Clinical Studies at the Washington University NF Center to learn about participation. Please visit NF Clinical Trials to discover what trials are currently available nationally.
I’m concerned about participating and want to learn more.
Agreeing to be a part of a study is an important decision. We encourage you to read through our frequently asked questions. Additionally, please feel free to contact us with any questions you might have. You can email us at NFClinicalStudies@neuro.wustl.edu.
I am interested in learning about other research at the Washington University NF Center.
In addition to clinical research, the Washington University NF Center conducts basic laboratory research to find better ways to manage NF1-associated optic pathway gliomas, malignant cancers, learning and attention deficits, as well as NF2-associated tumors. To learn more about these exciting projects please visit Research Areas Defined. Additionally, you can read our publications online.